Media6 months agoLes Bones Causes, El Matí de Catalunya Ràdio, supports the organisation and its mission
Media11 months agoVia Lliure de RAC1: La lluita incansable de l’Arnau i la Berta per evitar que la seva filla Bruna perdi la vista
Media11 months agoPresentation of the Foundation SSNEU | Fundació síndrome d’Usher: Antiga Fàbrica Estrella Damm
Media2 years agoThe students of Deltebre Institut de join forces to raise funds for a classmate with Usher syndrome
Media2 years agoBruna was born without hearing or balance and may lose her sight if we don’t find a cure
Media2 years agoThe program MeteoMauri and Catalunya Radio offered the opportunity to talk about our story and the creation of Save Sight Now Europe.
Media2 years agoBay Area couple raises funds to research rare genetic disorder that causes blindness and deafness
Media2 years agoThe fight against time to find a cure for Usher syndrome: “we are determined to find it and make it a reality”
Media2 years agoEFE Agency: Deafness, loss of balance and sight at risk, Bruna’s syndrome still without a cure.
Media2 years agoCRÓNICA BALEAR: Deafness, lack of balance and sight at risk, Bruna’s syndrome still without a cure.
Media2 years agoEL DIARIO.ES: Deafness, lack of balance and sight at risk, Bruna’s syndrome still without a cure.
Media2 years agoThe report “Coming out of the silence of deafness”, Mise au Point, RTS (Radio télévision Suisse)
Media2 years agoSave Sight Now Europe at Diario de Burgos. Love that led Espinosa Adell family to create the organisation.
Media2 years ago“The fact that they are rare diseases does not mean that it is impossible to find a cure, science shows the opposite”
Media2 years agoThe students of Deltebre Institut de join forces to raise funds for a classmate with Usher syndrome
Media2 years agoA child from Deltebre and his family make known the disease that will leave him blind
Media2 years agoUsher syndrome 1B, the disease that Leo has and that needs research to save his sight
Media2 years agoLeo Tomàs Parra: “I want to explain what Usher Syndrome 1B is and to be able to see many things in life”
Media2 years agoThe family of an 11-year-old boy from Deltebre is asking for help so he doesn’t go blind
Media2 years agoThe RTS podcast Les rencontres d’Émilie Gasc: Elise Meyer, a mother with a son affected with Usher Syndrome 1B
Media2 years agoRTS report with Meyer family: “The daily challenges of families with children affected with rare diseases”.
Media2 years agoArticle on La Liberté de Fribourg: Usher syndrome, for Félix’s family, happiness goes as far as his eyes can see.
Media3 years agoCÓRDOBA NEWS: The fight against time continues to find the cure for little Bruna’s Usher Syndrome
