Carla Roda directs “Per la Bruna”, a documentary about Usher syndrome type 1B and the family who founded Save Sight Now Europe. The sizzle reel will be shown at La Nit de la Visió.
News
SSNEU and the Institut reConnect join forces to accelerate Usher syndrome research
Save Sight Now Europe is funding a gene therapy project for Usher syndrome type 1B at the Institut reConnect in Paris, led by Sandrine Vitry and Aziz El-Amraoui.
Catalunya Ràdio: Berta Adell talks about Usher syndrome on El matí
Berta Adell, co-founder and president of Save Sight Now Europe, spoke on Catalunya Ràdio’s El matí about Usher syndrome type 1B, Bruna and research.
La Nit de la Visió 2026: tickets are now on sale
Saturday 21 November at the Recinte Modernista de Sant Pau, Barcelona. Tickets from €80. Everything we raise funds research to cure blindness in Usher 1B.
La Nit de la Visió 2025: €37,700 for Usher 1B research
The 3rd edition of La Nit de la Visió raised €37,700 at the Recinte Modernista de Sant Pau. Here is how the night went.
A quality test for every future Usher 1B treatment
SSNEU funded the first tool to see the MYO7A protein in lab-grown human retina. Save Sight Now and the Foundation Fighting Blindness are now taking it further.
Roses to beat Usher: €6,600 for research this Sant Jordi
For Sant Jordi 2026 we took Roses to beat Usher to the streets, medical centres and companies of Barcelona. Together we raised €6,600 for research.
The Night of Vision 2024: A Spotlight on Usher Syndrome
The annual La Nit de la Visió event, organized by Save Sight Now Europe,…
Nacuity Announces Positive Results for NP-1 Treatment. New Horizon for Usher Syndrome
Nacuity announces positive clinical results: oral treatment NPI-001 reduces photoreceptor loss by over 50%…
New Research Collaboration: Supporting Dr. Elvir Becirovic’s Innovative Gene Therapy Program for Usher Syndrome 1B
Save Sight Now Europe is proud to fund a cutting-edge research program led by…
