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Save Sight Now Europe works with scientists, researchers and companies to advance treatments for retinitis pigmentosa in Usher syndrome type 1B. With the support of our scientific committee, we fund the development of therapies and the research that gives us the tools and fills the knowledge gaps that still stand between us and our goal: a treatment for childhood blindness in Usher 1B.

Join us, as an individual or as a company. We stand by every donation and every sponsorship, and we tell you what your support makes possible.

For any question, or if you would like to talk about sponsorship, write to us at contact@savesightnoweurope.org.

IMPULSE

USHER PARTNERS 2026

In 2026, we are launching Usher Partners 2026 to take a step change in scale: a plan with a clear goal to secure continuity across research, data & biomarkers, awareness, and community action, accelerating the path toward treatments.

Over the past four years, SSNEU has invested €2.7 million in research programs through targeted grants and our own funds, accelerating the path toward a treatment for Usher 1B-related vision loss (retinitis pigmentosa).

SSNEU works across three pillars:
      • →Research acceleration
      • →Community & data readiness
      • →Awareness & fundraising.

Every Partner gives scientific continuity: Usher Partners sustain the research and the awareness work that helps accelerate it.

What you can expect from SSNEU

Every partnership includes a clear objective, practical materials, and a final impact report (what was raised, what it enabled, and what we accelerated).

Bruna as a baby, smiling with a teething toy in her mouth

COLLABORATE

USH Event Movement

The USH Event movement aims to raise funds that will contribute to the advancement of medical knowledge and potential treatments for Usher Syndrome type 1B through events.

Creating or joining a USH Event is simple and rewarding. With just a few clicks, you can have your page, a link to donations, and a space to motivate and engage your community or group.

You can also join existing events organized by fellow supporters or donate to them.