Frapp | Well being: Living with Usher Syndrome

At 3 years old, Félix is suffering from this very rare hereditary disease. Her parents testify to make her known.

Félix has Usher syndrome, a rare genetic childhood disease that manifests as deafness combined with progressive loss of sight, caused by retinitis pigmentosa. In Switzerland, approximately 350 people are affected in various forms. For the moment, this pathology does not know any solution or treatment.

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