Solidarity Run and Walk for a Rare Disease

Article published in Som Les Franqueses | 23.05.2023

It will take place on the morning of Sunday, June 4, and the money from the registrations will go to medical research

Bruna is a two-year-old girl who suffers from Usher 1B syndrome, a rare disease that causes loss of balance and hearing from birth and also vision during childhood, until reaching blindness. Friends and relatives of Bruna, who lives in Geneva with her parents, have joined forces to raise funds for research into this disease.

One of the actions will take place on Sunday, June 4 in the Falgar park with The Usher Race, with two routes, one of 5 km – walking – and another of 10 km. The money from the registration – 20 euros for adults and 5 euros for those under 18 – will go to the foundation that Bruna’s parents have promoted, Save Sight Now Europe.

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