Media3 months agoLes Bones Causes, El Matí de Catalunya Ràdio, supports the organisation and its missionThe section that has given the space to have a voice for Usher Syndrome…
Media8 months agoVia Lliure de RAC1: La lluita incansable de l’Arnau i la Berta per evitar que la seva filla Bruna perdi la vistaInterview at Via Lliure de RAC1 | 05.11.2023 Interview at Via Lliure with Xavier…
Media8 months agoPresentation of the Foundation SSNEU | Fundació síndrome d’Usher: Antiga Fàbrica Estrella DammPànxing | 07.08.23
Media1 year agoRadio Gavà: Usher Syndrome 1B interviewInterview at Radio Gavà | 21.06.2023 Sandra Jiménez, blind since the age of 6,…
Media1 year agoDeafness, loss of balance and sight at risk, Bruna’s syndrome still without a cure.Deafness, loss of balance and sight at risk, Bruna’s syndrome still without a cure.…
Media1 year agoThe students of Deltebre Institut de join forces to raise funds for a classmate with Usher syndromeSource: NacióThe students of Deltebre Institut de join forces to raise funds for a…
Media1 year agoBruna was born without hearing or balance and may lose her sight if we don’t find a cureCriar.cat | 23.05.23
Media1 year agoInstitut Deltebre is involved in research against Usher Syndrome 1Bsetmanari l’EBRE | 14.05.23