Després de les tenebres hi ha la llum — After the darkness, there is light.
A camera is following our fight to save Bruna’s sight — because no child with USH1B can wait.
Discover “Per la Bruna”, in production.
A feature-length documentary in production. Directed by Carla Roda · Produced by Tabata Films
Two voices
“When my daughter was diagnosed with Usher Syndrome type 1B, the only possible option was to act. But before the fight outward, there was another, more intimate one: to protect, above all, a clear mind and the strength to keep going each day. Bruna, Usher Syndrome and Save Sight Now Europe don’t only ask for determination from us; they ask for all our capacities, energy and focus to stay on the path —to work, to create, to communicate, to travel, to organize ourselves, and to fit all of this into our real, everyday life.”
— Berta Adell, mother of Bruna and CEO of Save Sight Now Europe
“This project is a deeply personal turn. It is not only a professional challenge but also an intimate journey, to document the strength of a family.”
— Carla Roda, director of “Per la Bruna”
The film
When our daughter Bruna was diagnosed with Usher Syndrome type 1B —a rare genetic condition that causes profound deafness from birth and a progressive loss of vision— we made a decision. The only possible option was to act.
“Per la Bruna” is the feature-length documentary that tells that story.
Directed by Carla Roda, the film follows two parallel journeys: the intimate story of our family, and the scientific mobilization that Arnau and I are leading from Save Sight Now Europe. It is about Bruna —and it is about every child with USH1B waiting for science to arrive on time.
The film captures the side of rare disease no one usually sees: the conversations with researchers and clinicians, the funding rounds, the regulatory paths, the doubts, the breakthroughs. The unglamorous, demanding, daily work of moving rare disease research from “promising” to “real” —and the love and determination that hold a family together while doing it.
Where the project is right now
Carla has been following our family for the past year and counting. The camera has been with us through laboratory meetings in Basel, scientific conferences in Denver, intimate family moments in Catalonia and Switzerland, and conversations with the researchers leading the global fight against USH1B.
Current stage: production
This page will be updated as the film progresses.
The director
Carla Roda is an award-winning editor and director, born in Barcelona and based in Los Angeles. With over fifteen years of experience editing documentary cinema in the United States, she is known for shaping high-impact non-fiction narratives for global platforms.
Her recent credits include:
- “Karol G: Mañana Fue Muy Bonito” — Netflix
- “Menudo: Forever Young” — HBO Max
- “KICKBACK” — Campfire Studios (an investigation into FIFA corruption)
- “We Are Guardians” — produced by Fisher Stevens, executive produced by Leonardo DiCaprio
Her work has premiered at Tribeca, SXSW and Sundance, and has received major recognitions, including the Orson Welles Award.
“Per la Bruna” is her directorial debut.
More about Carla: www.tabatafilms.com →
Save the Date · Sizzle screening
The first public presentation of the project will take place on: 26 May 2026 · 11:00 Cinema Edison, Granollers
The event will include the screening of the sizzle reel, a conversation with the director Carla Roda, and a presentation by Berta Adell — Bruna’s mother and CEO of Save Sight Now Europe — about what the documentary captures and why this story needs to be told now.
RSVP: carlaroda@tabatafilms.com
Behind the scenes
Stay close to the project
Subscribe to the SSNEU newsletter for updates on the documentary, our research milestones and upcoming events.
Every euro counts. Donations to Save Sight Now Europe directly fund the research that the documentary captures.
Why this film matters
Rare diseases like Usher Syndrome 1B are too rare for industry to prioritize — and too devastating for families to wait. Less than one in 100,000 people in Europe live with USH1B.
This film is a tool. A way to break the silence, to bring visibility to what families like ours are pushing forward every day, and to mobilize the resources that can shorten the time between scientific promise and clinical reality.
If “Per la Bruna” helps one more child reach a treatment in time, the work will have been worth it.
Every euro counts. Donations to Save Sight Now Europe directly fund the research that the documentary captures.
“Per la Bruna” is a documentary produced by Tabata Films in association with Save Sight Now Europe.
GET IN TOUCH: Press, partnerships, festivals, distribution: carlaroda@tabatafilms.com | contact@savesightnoweurope.org