USH Movement

Welcome to the USH Event movement, where we come together as a community to support groundbreaking research for Usher Syndrome Type 1B. By promoting various types of events, we aim to raise funds that will contribute to the advancement of medical knowledge and potential treatments for this rare genetic disorder.

COLLABORATE

USH Event Movement

The strength of the community we aim to build shines in three key aspects: unity, raising awareness of Usher Syndrome type 1B and the solidarity that drives us to fundraise.

The active involvement of family and friends in event organization not only creates awareness but also infuses vital energy into our goal. Each event not only contributes essential funds but also becomes a beacon of hope and happiness.

Together, we are weaving a brighter future and treatments for Usher Syndrome type 1B. Let’s keep building bridges toward healing!

Creating or joining a USH Event is simple and rewarding. With just a few clicks, you can have your own page, a link to donations, and a space to motivate and engage your community or group.

You can also join existing events organized by fellow supporters or donate to them.

Events
Ush Supporters

Save Sight Now Europe (SSNEU) is a global initiative dedicated to promoting fundraising for scientific research and the development of treatments for Usher Syndrome type 1B.

We warmly welcome the participation of third parties, groups, and supporters who wish to organize actions aligned with this goal and channel the funds raised to our organization. Your involvement is an essential expression of solidarity that helps accelerate progress.

To ensure transparency and integrity in every initiative, all fundraising actions must be communicated in advance. For this reason, we ask collaborators to sign and send us the Collaboration Charter, as a shared commitment to clarity and accountability and the Event Form completed, so that we can properly announce and support your initiative through our official channels.

This process not only guarantees trust in the use of contributions—whether received directly by the Foundation, the Association, or through supporters—but also allows us to highlight and celebrate each action as part of our collective effort.

USH Stories