Save Sight Now Europe is the only organisation in Europe dedicated exclusively to Usher syndrome type 1B: a rare disease that takes away a child’s hearing, balance and sight from birth. Every November, La Nit de la Visió brings together families, scientists, friends, donors and sponsors to make possible the research we carry out with research teams from around the world to cure blindness in Usher 1B.
A RARE DISEASE
A night to accelerate its cure.
4th edition
A movement that grows every year.
Watch how La Nit de la Visió 2025 went
€2.7 million
invested to date in Usher 1B research. La Nit de la Visió alone has raised €108,000 in three editions.
Will you help us grow this figure?
Take part in the charity auction
Bidding is easy: go to Bidding Owl on your phone or computer, choose the lot you like and place your bid. There are 18 lots: original art and signed prints, thanks to the artists who always support us with their work; experiences at AIRE Ancient Baths and Semproniana restaurant; signed Toulouse FC and RCD Espanyol shirts; and pieces from Smeg, Pandora and Rodier Paris. You can bid until Sunday 22 November at 23:55 (CET).
SPECIAL GUEST
The Documentary
Per la Bruna
Tonight, we’ll screen live the sizzle reel of Per la Bruna, the documentary directed by Carla Roda that explains Usher syndrome type 1B, the work of Save Sight Now Europe | Usher syndrome foundation, and the story of the family who founded the organisation following their personal diagnosis. A story with a name and a face that represents every girl and boy, and every family, living the same reality today. A chance for those who haven’t seen it yet. Because after the darkness, there is light.
A night to celebrate the year everything starts to blossom
2025 was the year of the first human clinical trial for Usher syndrome type 1B, run by AAVantgarde Bio. A year of new research agreements with the Institut reConnect (Institut Pasteur) and the first results of the programme with RetinAI (EssilorLuxottica) and the Institut de la Vision. We have also started a programme for a possible ASO therapy with Hospital del Mar and Dr. Pablo Villoslada, and we’re working on two complementary programmes with Catalan companies we can’t reveal yet. We celebrate it as always: with music, a good dinner and the community that makes it possible. Discover the programme for the night ↓ Save the date, La Nit 2026
THE NIGHT, STEP BY STEP
What awaits you at Sant Pau
19:30
Doors open
Welcome drink, photocall, raffle and Racó Solidari to light up the night.
23:30
End of the evening
Together, we will have taken one more step towards a cure for childhood blindness.
23:55
Sunday 22/11 · The auction closes
You still have the whole next day to place your bid online.
Live the night
Auction and Racó Solidari
Open from 8/11 until Sunday 22/11 at 23:55.
During the gala, lots on display at the Racó Solidari.
Go to the auction on Bidding Owl →
JOIN THE 4TH EDITION
Tickets
We offer 16 Early Bird tickets. To sit together, add the same “table/group name” as the rest of your friends/family when buying.
Want to add a donation? Once you’ve chosen your ticket, you can use a custom amount (for example €150 instead of €120) to help us go further.
YOU CAN STILL BE THERE
Row 0
Can’t make it to Barcelona on 21 November?
Row 0 is your way of being there anyway: a symbolic row reserved for those who support us from afar, designed especially for the community that follows us from Switzerland, Italy, or anywhere else. Your support, from €50, helps keep the programme with the Institut reConnect alive, along with the rest of the research we make possible every year.
Those of you who support us from Row 0 aren’t in the room, but you are part of La Nit. To thank you for joining us from afar, everyone who makes a Row 0 donation enters a draw for wonderful prizes donated by companies that support us: AIRE Ancient Baths, Textura Interiors, Cinema Maldà and El Celler d’en Medir. Let your generosity shine from Row 0!
Every donor gets at least one entry, plus one more for every €50 given. The draw will take place during the gala on 21 November, and we will let the winners know.
You can adjust the amount to fit you before confirming your donation.
Tax deduction for individuals in Spain: 80% of the first €250 and 40% of the rest (45% if you have donated to the foundation in the two previous years). Example: for a €120 ticket, you get €96 back in your income tax return. To receive the Spanish tax certificate, book on the Catalan or Spanish page. Swiss taxpayers: tick “I would like a Swiss tax receipt” on the form.
Are you a company?
Sponsor La Nit de la Visió
Your sponsorship sustains active, named research programmes such as the programme with the Institut reConnect (at the Institut Pasteur in Paris), or the biomarker programme with RetinAI and the Institut de la Vision, not an abstract cause.
If you sponsor the Gold tier, send us the logo you’d like us to display at your table.
Companies that support us
Tax deduction for companies: 40% of any amount (up to 15% of the taxable base for Corporate Income Tax); from the 3rd consecutive year of recurring donation, this deduction rises to 50%.
Practical information
Getting there
Light deserves to be saved.
A night to accelerate the cure for childhood blindness.
21 November 2026 · Recinte Modernista de Sant Pau, Barcelona
QUESTIONS:
berta@savesightnoweurope.org, patrocinis@savesightnoweurope.org
