Save Sight Now Europe is the only organisation in Europe dedicated exclusively to Usher syndrome type 1B: a rare disease that takes away a child’s hearing, balance and sight from birth. Every November, La Nit de la Visió brings together families, scientists, friends, donors and sponsors to make possible the research we carry out with research teams from around the world to cure blindness in Usher 1B.
A RARE DISEASE
A night to accelerate its cure.
4th edition
A movement that grows every year.
Watch how La Nit de la Visió 2025 went
€2.7 million
invested to date in Usher 1B research, through events, awards and funding calls SSNEU applies to every year.
La Nit de la Visió is a key part of this: in three editions it has raised €108,000, all of it going to programmes such as reConnect, the collaboration with the Institut Pasteur, and the five-year study with RetinAI (EssilorLuxottica) and the Institut de la Vision, which this year is expanding its patient cohort and the volume of data collected.
SPECIAL GUEST
The documentary Per la Bruna
Tonight, we’ll screen live the sizzle reel of Per la Bruna, the documentary directed by Carla Roda that explains Usher syndrome type 1B, the work of Save Sight Now Europe | Usher syndrome foundation, and the story of the family who founded the organisation following their personal diagnosis. A story with a name and a face that represents every girl and boy, and every family, living the same reality today. A chance for those who haven’t seen it yet. Because after the darkness, there is light.
A night to celebrate the year everything starts to blossom
2025 was the year of the first human clinical trial for Usher syndrome type 1B, run by AAVantgarde Bio. A year of new research agreements with the Institut reConnect (Institut Pasteur) and the first results of the programme with RetinAI (EssilorLuxottica) and the Institut de la Vision. We have also started a programme for a possible ASO therapy with Hospital del Mar and Dr. Pablo Villoslada, and we’re working on two complementary programmes with Catalan companies we can’t reveal yet. We celebrate it as always: with music, a good dinner and the community that makes it possible. The detailed programme for the evening will be revealed very soon. Save the date, La Nit 2026
JOIN THE 4TH EDITION
Tickets
We offer 16 Early Bird tickets. To sit together, add the same “table/group name” as the rest of your friends/family when buying.
Want to add a donation? Once you’ve chosen your ticket, you can use a custom amount (for example €150 instead of €120) to help us go further.
YOU CAN STILL BE THERE
Row 0
Can’t make it to Barcelona on 21 November?
Row 0 is your way of being there anyway: a symbolic row reserved for those who support us from afar, designed especially for the community that follows us from Switzerland, Italy, or anywhere else. Your support, the same value as a General ticket, helps keep the programme with the Institut reConnect alive, along with the rest of the research we make possible every year.
You can adjust the amount to fit you before confirming your donation.
Are you a company?
Sponsor La Nit de la Visió
Your sponsorship sustains active, named research programmes such as the programme with the Institut reConnect (at the Institut Pasteur in Paris), or the biomarker programme with RetinAI and the Institut de la Vision — not an abstract cause.
If you sponsor the Gold tier, send us the logo you’d like us to display at your table.
Companies that have already supported us
Tax deduction for companies: 40% of any amount (up to 10% of the taxable base for Corporate Income Tax); from the 3rd consecutive year of recurring donation, this deduction rises to 50%.
Practical information
Getting there
Light deserves to be saved.
A night to accelerate the cure for childhood blindness.
21 November 2026 · Recinte Modernista de Sant Pau, Barcelona
QUESTIONS:
berta@savesightnoweurope.org, patrocinis@savesightnoweurope.org
