On Saturday 21 November we hold the 4th edition of La Nit de la Visió, the charity gala of Save Sight Now Europe | Fundació Síndrome d’Usher, at the Recinte Modernista de Sant Pau in Barcelona.
Usher syndrome type 1B is a rare genetic disease. Children who have it are born profoundly deaf, with balance problems, and start losing their sight during childhood. There is still no approved treatment.
Every November, La Nit brings together families, scientists, friends and companies to fund the research we carry out with teams around the world. This year the funds go to our ongoing research programmes, such as the five-year study with RetinAI and the Institut de la Vision, and to the new programmes we have started.
During the evening we will show the sizzle reel of “Per la Bruna”, Carla Roda’s documentary about Usher syndrome and our family.
Tickets
- Early Bird: €80 (only 16 tickets)
- Individual: €120
- Duo: €220
- Group of 4: €440
- Table of 8: €900
Doors open at 7.30 pm and the evening starts at 8.30 pm.
If you can’t come to Barcelona, you can still be part of it with Row 0. And if you run a company, you can sponsor the night.
Your ticket counts as a donation. If you pay tax in Spain, book on the Catalan or Spanish page to receive the Spanish tax certificate: a €120 ticket gives you €96 back. Swiss taxpayers can ask for a Swiss tax receipt on the form.
