8sports: padel mobilises in Gran Canaria to drive research into a cure for blindness in Usher syndrome
The Canary Islands sports outlet 8sports was one of the first to announce the…
Media
Ràdio Barberà: interview about the solidarity padel tournament “El teu cop compta”
The summer magazine "Bon estiu, Barberà!" on Ràdio Barberà (98.1 FM) dedicated an interview…
Les Bones Causes: Another Year Giving Voice to Usher Syndrome on Catalunya Ràdio
This season (2024–2025), the “Les Bones Causes” segment on Catalunya Ràdio’s morning program has…
Save Sight Now Europe featured in La Ciencia de lo Singular podcast on Inherited Retinal Dystrophies
This podcast is created by Share4Rare, an initiative of the Sant Joan de Déu…
Freiburger Nachrichten: “The bittersweet story of Felix”
The Fribourg daily Freiburger Nachrichten told the story of Felix, a five-year-old boy with…
Les Bones Causes, El Matí de Catalunya Ràdio, supports the organisation and its mission
The section that has given the space to have a voice for Usher Syndrome…
Via Lliure de RAC1: La lluita incansable de l’Arnau i la Berta per evitar que la seva filla Bruna perdi la vista
Interview at Via Lliure de RAC1 | 05.11.2023 Interview at Via Lliure with Xavier…
Radio Gavà: Usher Syndrome 1B interview
Interview at Radio Gavà | 21.06.2023 Sandra Jiménez, blind since the age of 6,…
