Media2 months agoCanarias7: padel mobilises in Gran Canaria to drive research into a cure for blindness in Usher syndromeCanarias7 announced the I Torneo de Pádel por el Usher, a big solidarity weekend…
Media2 months ago8sports: padel mobilises in Gran Canaria to drive research into a cure for blindness in Usher syndromeThe Canary Islands sports outlet 8sports was one of the first to announce the…
Media3 months agoRàdio Barberà: interview about the solidarity padel tournament “El teu cop compta”The summer magazine "Bon estiu, Barberà!" on Ràdio Barberà (98.1 FM) dedicated an interview…
Media1 year agoLes Bones Causes: Another Year Giving Voice to Usher Syndrome on Catalunya RàdioThis season (2024–2025), the “Les Bones Causes” segment on Catalunya Ràdio’s morning program has…
Media1 year agoSave Sight Now Europe featured in La Ciencia de lo Singular podcast on Inherited Retinal DystrophiesThis podcast is created by Share4Rare, an initiative of the Sant Joan de Déu…
Media2 years agoFreiburger Nachrichten: “The bittersweet story of Felix”The Fribourg daily Freiburger Nachrichten told the story of Felix, a five-year-old boy with…
Media2 years agoLes Bones Causes, El Matí de Catalunya Ràdio, supports the organisation and its missionThe section that has given the space to have a voice for Usher Syndrome…
Media3 years agoVia Lliure de RAC1: La lluita incansable de l’Arnau i la Berta per evitar que la seva filla Bruna perdi la vistaInterview at Via Lliure de RAC1 | 05.11.2023 Interview at Via Lliure with Xavier…
Media3 years agoPresentation of the Foundation SSNEU | Fundació síndrome d’Usher: Antiga Fàbrica Estrella DammPànxing | 07.08.23