Lemon House Vespreig – 1st Edition, in support of Usher Syndrome Type 1B, Òrrius

27.834,00€

Program Overview

[TIME] – Doors open, welcome & start of fundraising (fundraising continues throughout the evening)

7pm – Lemon House lemonade served

[TIME] – Live music

[TIME] – Raffle results

[TIME] – End of the evening

Donate to Cure

A summer evening of lemonade, music and solidarity for USH1B.
A first edition, with the intention to become a yearly appointment for Òrrius!

Join the village of Òrrius for an evening dedicated to supporting Usher Syndrome Type 1B. The Lemon House Vespreig takes its name from a lemonade created especially for the occasion, which takes center stage as neighbors and visitors come together for a festive night with a purpose: raising funds for research and giving visibility to the syndrome through Elga‘s story.

  • Live music: an evening atmosphere with music running through the night.
  • Lemon House: the village’s own lemonade, created for the occasion and the heart of the event.
  • Raffle & fundraising: take part in the raffle and donations supporting Save Sight Now Europe’s research programs toward a treatment for Usher Syndrome Type 1B.

July 17th, 2026
Church sq., Òrrius

Join Elga’s family to help Cure Usher Syndrome type 1B!

Help Elga & all children with USH1B!

Usher Syndrome Type 1B is a rare genetic condition that causes profound congenital deafness, balance disorders, and progressive childhood vision loss. There is currently no treatment. Elga’s story is the reason this village night exists — and the reason every lemonade sold, every raffle ticket bought, brings us one step closer to a cure.

Support Us!

Every donation brings us closer to a cure. Your contributions directly fund research to find treatments for childhood blindness in Usher Syndrome Type 1B.

Supporters leading the Event: Sergi Torres & family

Day and location of the Event: 17th July, Church sq., Òrrius, Catalonia

Event Fundraising Donation: ongoing event

Supporters leading the Event: Sergi Torres & family

Day and location of the Event: 17th July, Church sq., Òrrius, Catalonia

Event Fundraising Donation: ongoing event