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Antigua Fábrica Estrella Damm : C/ Rosselló, 515, 08025 Barcelona.

Tuesday, November 7th at 6pm.

Participate in the Foundation Save Sight Now Europe | Síndrome d’Usher Presentation

We are excited to gather in our hometown to present the Save Sight Now Europe | Usher Syndrome Foundation.

We created this organization two years ago, when our daughter Bruna was diagnosed with Usher syndrome type 1B, establishing an association in Switzerland. Now we are very happy to be able to work in Spain with the establishment of the Foundation and to present it in Barcelona, our hometown.

We want to explain the situation of the disease, the journey thus far, and ways in which you can contribute to finding a treatment for Retinitis Pigmentosa in Usher 1B. It will be a time to share, inform, enjoy the beautiful music of David Carabén (Mishima) and some more surprises, while we have a drink and talk about the future of all people with Usher Syndrome type 1B.

Together we can make a huge difference in the lives of those facing the threat of vision loss. Join us for an evening full of positivity and generosity, marking a milestone in the fight against Usher Syndrome Type 1B .

Event sponsored by:

Event Donation Packs

Donation Accelerate Research

50€

Tote bag + Cap + Event access

Donation Bring Light

35€

Tote bag + Event access

Donation Give support

25€

Event access

Information on the tax deductibility of your donation

The tax benefits are provided for in Law 49/2002, of December 23, 2002, on the tax regime for non-profit entities and tax incentives for patronage in Catalonia.

DONATIONS:

Individuals – Personal income tax deduction (with a limit of 10% of the taxable income)
Up to 150 €, 80% deduction.
Additional amount from 150 €, deduction of 35%.
Additional amount from 150 €, when in the fiscal year and in the two previous years donations have been made for an amount equal or higher to the same entity, deduction of 40%.

Legal entities – Deduction of the IS tax liability (with a limit of 10% of the taxable base)
Any amount, 35% deduction.
When donations have been made for an amount equal to or greater than the same amount to the same entity during the two previous fiscal years, deduction of 40%.

Participate with Row 0

If you can’t be there on the 7th, you can contribute with the 0 ROW to help us create a future full of hope. Your participation in 0 ROW is a valuable opportunity to be part of La Nit de la Visió, our joint effort to support science.

With your generous contribution, you are helping us to advance essential projects that bring us ever closer to our goal: finding a treatment for Retinitis Pigmentosa in Usher 1B. Join us in this important mission and be part of the change. Together, we can do it. Your support makes a difference!

Program

18.00h Entry
18.30h Opening and thanks from Berta and Arnau. Presentation of the Foundation with research updates and others.
19.15h Acoustic concert by David Carabén (Mishima).
19.45h Closing of Arnau and Berta highlighting the value that each of us can have in the fight against Usher 1B.
20-21.30h Let’s put the light on: time to enjoy snacks by Sal Marina Canela Fina and share with all attendees the achievements on the road to the treatment of Usher 1B.
21.30h End