We are excited to gather in our hometown to present the Save Sight Now Europe | Usher Syndrome Foundation.
We created this organization two years ago, when our daughter Bruna was diagnosed with Usher syndrome type 1B, establishing an association in Switzerland. Now we are very happy to be able to work in Spain with the establishment of the Foundation and to present it in Barcelona, our hometown.
We want to explain the situation of the disease, the journey thus far, and ways in which you can contribute to finding a treatment for Retinitis Pigmentosa in Usher 1B. It will be a time to share, inform, enjoy the beautiful music of David Carabén (Mishima) and some more surprises, while we have a drink and talk about the future of all people with Usher Syndrome type 1B.
Together we can make a huge difference in the lives of those facing the threat of vision loss. Join us for an evening full of positivity and generosity, marking a milestone in the fight against Usher Syndrome Type 1B .
Event sponsored by: