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A Night of Music and Solidarity for USH1B.

Usher Type 1B Awareness and Fundraising Evening at La Tour Vagabonde, Fribourg
Usher Type 1B Awareness and Fundraising Evening at La Tour Vagabonde, Fribourg

The Meyer family hosted an evening dedicated to supporting  Usher Syndrome Type 1B. Set in the enchanting Tour Vagabonde, a unique wooden structure modeled after an Elizabethan theater, the event offered an unforgettable experience.

  • 🎵 Live Musical Performance: A soulful concert by renowned artists in an intimate and inspiring setting.
  • Scientific Insights: An update on the latest advances in medical research for Usher Syndrome Type 1B and how Save Sight Now Europe is making strides towards a cure.
  • 💌 Fundraising Initiative: Fundraising to support vital research and initiatives for Usher Syndrome Type 1B.
A Look Back at Last Soirée de Soutien  au Bilboquet by Meyer’s family on 2022!

Relive special moments from the previous event of 2022, where the magic of music and the dedication to our mission brought people together.

The March 1st event was a great success!

The Meyer family thanks you for your presence in the evening to support the search for a treatment for USH1B.

The total amount raised for this event is:

27.834,00€

March 1st, 2025
Tour Vagabonde, Fribourg

Live Concert by Melissa Kassab

You can still donate to help cure Usher Syndrome type 1B.

Program Overview

5:00 PM: Welcome and Reception. Start of fundraising. *Fundraising throughout the evening.

6:30 PM: Aperitif and Meal.

7:30 PM: Conference and Round Table.

8:15 PM: Raffle result.

8:30 to 10:00 PM: Live Concert by Melissa Kassab.

Midnight: Closing.

(Tour Vagabonde Website)

Support Us!

Every donation brings us closer to a cure. Your contributions directly fund research to find treatments for childhood blindness in Usher Syndrome Type 1B.

Supporters leading the Event: Elise and Xavier Meyer

Day and location of the Event: 1st March 2025, Tour Vagabonde, Fribourg

Event Fundraising Donation: 27.600CHF