A Christmas sales event to fight Usher Syndrome type 1B and help SSNEU | Fundació Síndrome d’Usher help science to find a treatment for this rare condition.
Christmas Sales Event at Institut Escola Gava Mar, Catalonia
A Xmas little market in Jordi’s (Ush 1B affected child) school to raise funds for SSNEU and Usher Syndrome.
Supporters leading the Event: Jenny Gea & Jordi Mas (Jordi’s family)
Day and location of the Event: December 15-16th 2023 | Gavà Mar, Catalonia
Event Fundraising Donation: 1.413,35€
