Summary
The annual La Nit de la Visió event, organized by Save Sight Now Europe, was once again a beacon of hope and progress in the fight against Usher Syndrome type 1B. On November 28, 2024, we gathered in the stunning Hospital de Sant Pau in Barcelona to raise crucial funds and bring together researchers, families, and the community dedicated to accelerating treatments for this rare genetic condition.
The annual La Nit de la Visió event, organized by Save Sight Now Europe, was once again a beacon of hope and progress in the fight against Usher Syndrome type 1B. On November 28, 2024, we gathered in the stunning Hospital de Sant Pau in Barcelona to raise crucial funds and bring together researchers, families, and the community dedicated to accelerating treatments for this rare genetic condition.
An Unforgettable Evening
The event was a celebration of unity, resilience, and scientific advancement. Guests enjoyed an exquisite cocktail dinner by 21 de Marzo, surrounded by individuals whose lives have been touched by Usher Syndrome. Through deeply moving testimonials, shared with the support of The Social Vim Collective, we were reminded of the urgent need to continue pushing boundaries in research and treatment.
Adding to the magic of the night, the extraordinary pianist Laura Andrés captivated the audience, creating an atmosphere of inspiration and solidarity. The beauty and significance of the evening were captured by photographer Angie Alcázar (ruidosfuera_estudio), preserving these moments for us to cherish.
A Collective Effort
None of this would have been possible without the tireless work of our dedicated volunteers, whose passion and effort ensured that every detail of the event shone brightly. We are also deeply grateful to our generous sponsors, whose commitment to innovation and progress continues to drive our mission forward:
Gold Sponsor for Innovation: Almenibor, Pymej & Tectrol
Silver Sponsors for Progress: Bon Preu Esclat
Bronze Sponsors for Hope: Atma & Instituto Médico Privado
Fundraising Success
Through the generosity of our attendees and donors, we successfully raised an incredible 30,300€, a testament to the shared dedication to finding a cure for Usher Syndrome type 1B.
We left the evening stronger, more united, and more determined than ever to continue our fight against childhood blindness. Thank you to every donor, friend, scientist, and family member who has supported us on this journey.
Together, we are making strides towards a brighter future.