Les Bones Causes: Another Year Giving Voice to Usher Syndrome on Catalunya Ràdio
This season (2024–2025), the “Les Bones Causes” segment on Catalunya Ràdio’s morning program has…
Media
Save Sight Now Europe featured in La Ciencia de lo Singular podcast on Inherited Retinal Dystrophies
This podcast is created by Share4Rare, an initiative of the Sant Joan de Déu…
Les Bones Causes, El Matí de Catalunya Ràdio, supports the organisation and its mission
The section that has given the space to have a voice for Usher Syndrome…
Via Lliure de RAC1: La lluita incansable de l’Arnau i la Berta per evitar que la seva filla Bruna perdi la vista
Interview at Via Lliure de RAC1 | 05.11.2023 Interview at Via Lliure with Xavier…
Radio Gavà: Usher Syndrome 1B interview
Interview at Radio Gavà | 21.06.2023 Sandra Jiménez, blind since the age of 6,…
Deafness, loss of balance and sight at risk, Bruna’s syndrome still without a cure.
Deafness, loss of balance and sight at risk, Bruna’s syndrome still without a cure.…
The students of Deltebre Institut de join forces to raise funds for a classmate with Usher syndrome
Source: NacióThe students of Deltebre Institut de join forces to raise funds for a…
