Many thanks to the personalities of the Catalan cultural sector who have supported Save Sight Now Europe Fundació Síndrome d’Usher. We are deeply thankful to Catalunya Ràdio and Les Bones Causes, a section to support organizations and foundations that fight and work for those receiving little attention like rare diseases such as Usher Syndrome.

The search for a cure depends on many factors, especially that science and pharmaceuticals can advance and that treatments reach patients. Visualizing the causes, consequences and the fighters behind them is key to understanding this puzzle. We thank Catalunya Ràdio for giving us a voice through the section “Les Bones Causes”. It has been a pleasure to work closely with your El Matí team to convey what and why it is so important that we can work to accelerate treatments for Usher syndrome. We’re in a hurry, it’s a cross-country race but we’re training hard✨

Each month we are joined by a personality, a powerful and generous voice, who puts the spotlight on Usher syndrome type 1B Listen to them and share!

A special thanks to Mercè Martínez, Clara Segura, Daniel Anglès, Jordi Bosch,  Mara Jiménez and LKaura Andrés for supporting us and supporting us with their wedges. Thanks to our friend, volunteer and all, Gara Roda. We are thankful to each of them and to the Catalunya Ràdio team.